What is Cerebral Palsy?

Day2DayParenting Child Development

Cerebral Palsy is the term used to describe any one of a number of neurological disorders that appear in infancy or early childhood, and permanently affect body movement and muscle coordination, but don’t worsen over time.

Even though cerebral palsy affects muscle movement, it isn’t caused by problems in the muscles or nerves. It is caused by abnormalities in parts of the brain that control muscle movements. The majority of children with cerebral palsy are born with it, although it may not be detected until months or years later. Please read our article on Selective Dorsal Rhizotomy.

Cerebral Palsy Symptoms

The early signs of Cerebral Palsy (CP) usually appear before a child reaches 3 years of age. The most common are a lack of muscle coordination when performing voluntary movements (ataxia); stiff or tight muscles and exaggerated reflexes (spasticity); walking with one foot or leg dragging; walking on the toes, a crouched gait, or a scissored gait; and muscle tone that is either too stiff or too floppy.

A small number of children have Cerebral Palsy as the result of brain damage in the first few months or years of life, brain infections such as bacterial meningitis or viral encephalitis, or head injury from a motor vehicle accident, a fall, or child abuse.

How is Cerebral Palsy Diagnosed?

Doctors test your baby’s motor skills and closely evaluate the mothers and baby’s medical history. In addition to checking for the symptoms mentioned above, the doctor will also test the baby’s reflexes and look for early development of hand preference. During the first twelve months of life, babies usually do not show a hand preference. But infants with spastic hemiplegia may develop a preference much earlier, since the hand on the unaffected side of their body is stronger and more useful.

Doctors also rule out other disorders and determine if the condition is getting worse. Cerebral Palsy is not progressive. So, if the child is continuously losing additional motor skills, its another disease or condition. Tests such as computed tomography (CT) scans, magnetic resonance imaging (MRI), and ultrasonography can be ordered. Please read our article on Selective Dorsal Rhizotomy.

Causes of Cerebral Palsy

Cerebral Palsy is caused by an injury to the brain before, during, or shortly after birth. In many cases, no one knows for sure what caused the brain injury or what may have been done to prevent the injury.

Sometimes injuries to a baby’s brain happen while the baby is still in the mothers womb. The injury might be caused by an infection or by an accident in which the mother is hurt. If a mother has a medical problem, such as high blood pressure or diabetes, this can also cause problems in the baby. There may be problems during birth, such as the baby not getting enough oxygen, or a difficult delivery in which the baby’s brain is injured. Problems after birth may happen when a baby is born too soon (premature delivery) and his body is not ready to live outside his mothers womb. Even babies born at the right time can have infections, or bleeding in their brain which causes a brain injury because the brain is still developing even after birth.

Cerebral Palsy Treatment

Cerebral Palsy cant be cured, but treatment will often improve a child’s capabilities. Many children go on to enjoy near-normal adult lives if their disabilities are properly managed. In general, the earlier treatment begins, the better chance children have of overcoming developmental disabilities or learning new ways to accomplish the tasks that challenge them. Treatment may include physical and occupational therapy, speech therapy, drugs to control seizures, relax muscle spasms, and alleviate pain; surgery to correct anatomical abnormalities or release tight muscles; braces and other orthotic devices; wheelchairs and rolling walkers; and communication aids, such as computers with attached voice synthesizers.

Read our article on Selective Dorsal Rhizotomy.

Types of Cerebral Palsy?

Spastic Cerebral Palsy

If muscle tone is too high or too tight, the term spastic is used to describe the type of cerebral palsy. Children with spastic CP have stiff and jerky movements because their muscles are too tight. They often have a hard time moving from one position to another or letting go of something in their hand. This is the most common type of Cerebral Palsy. About half of all people with Cerebral Palsy have spastic Cerebral Palsy.

Ataxic Cerebral Palsy

Low muscle tone and poor coordination of movements is described as ataxic (a-tax-ick) Cerebral Palsy. Children with ataxic CP look very unsteady and shaky. They have a lot of shakiness, like a tremor you might have seen in a very old person, especially when they are trying to do something like write, turn a page, or cut with scissors. They also often have very poor balance and may be very unsteady when they walk. Because of the shaky movements and problems coordinating their muscles, kids with ataxic Cerebral Palsy may take longer to finish writing or to complete art projects.

Athetoid Cerebral Palsy

The term athetoid is used to describe the type of Cerebral Palsy when muscle tone is mixed sometimes too high and sometimes too low. Children with athetoid Cerebral Palsy have trouble holding themselves in an upright, steady position for sitting or walking, and often show lots of movements of their face, arms and upper body that they don’t mean to make (random, involuntary movements). These movements are usually big. For some kids with athetoid CP, it takes a lot of work and concentration to get their hand to a certain spot (like to scratch their nose or reach for a cup). Because of their mixed tone and trouble keeping a position, they may not be able to hold onto things (like a toothbrush, fork, or pencil). About one-fourth of all people with CP have athetoid Cerebral Palsy.

Mixed Cerebral Palsy

When muscle tone is too low in some muscles and too high in other muscles, the type of cerebral palsy is called mixed. About one-fourth of all people with Cerebral Palsy have mixed Cerebral Palsy.

Besides different kinds of muscle tone, kids with CP also show different parts of their bodies that are affected by the CP. This is also due to what part of their brain was hurt and how big the injury was. Please read our article on Selective Dorsal Rhizotomy.

Quadriplegia

When a child shows Cerebral Palsy in all four of their limbs both arms and both legs, it is called quadriplegia. Quad means four. Usually, kids with quadriplegia have trouble moving all the parts of their bodies, their face and trunk, as well as their arms and legs, and may need a wheelchair to get around. Because of the problems controlling the muscles in their face and upper body, they also have trouble talking and eating.

Hemiplegia

Hemiplegia means that the CP affect one side of the child’s body. Hemi means half, so the right arm and leg or the left arm and leg are affected. The other side of the child’s body works just fine. Many children with hemiplegia are able to walk and run, although they may look a little awkward or have a limp.

Diplegia

Some children have Cerebral Palsy just in their legs, or much more severe in their legs than in their arms. This is called diplegia. Di means two, so in diplegia, only the two lower limbs are affected. As you probably can guess, the difficulty for children with diplegia is using their legs, so walking and running may be hard for them. Because their upper bodies are usually not affected, they have a good ability to hold themselves upright and a good use of their arms and hands. You may wonder whether anyone ever has CP in their arms but not their legs. This happens sometimes, but it is very, very rare.

Problems Associated with Cerebral Palsy?

In addition to problems controlling their muscle movement, children with Cerebral Palsy may have some other problems too. Most of these are caused by the same brain injury that caused the Cerebral Palsy.

Talking and Eating

Just as Cerebral Palsy can affect the way a person moves his or her arms and legs, it can also affect the way he or she moves his or her mouth, face and head. This can make it hard for the person to talk clearly and to bite, chew and swallow food. If you meet a girl with CP, you may notice that her speech is hard to understand or that she seems to work very hard just to get out a few words. This is because she is not able to make her lips, jaw and tongue move as quickly as you can. She may also have trouble controlling her breathing flow to make her voice work. All of these parts of your body are very important in talking.

Try this: Make a g sound (say guh). To do that, you must pull your tongue back and touch the back of your tongue to the back part of the roof of your mouth (your palate). Then, you must breathe out a little but not let the breath through until you are ready to make the sound. When you say guh, you let your tongue drop while letting the breath out and turning on your voice. Whew! That’s a lot of stuff to do just to make one sound. Just think of all the movements you must put together to say a whole word, or a sentence. Now imagine what it would be like to make sounds and words if you had trouble controlling your tongue, lips, and breathing!

The speech problem most children with Cerebral Palsy have is called dysarthria (dis-are-three-a). That means it is hard for them to control and coordinate the muscles needed to talk. Their speech may sound very slow and slurred, and their faces may look a little funny when they are trying to talk. Some kids voices may sound different, too. If too much air comes through your nose when you talk, you sound hypernasal (hyper means too much), like Erkel from the old TV show Family Matters. If not enough air comes through your nose, you sound hyponasal (hypo means not enough), like when you have a bad cold and cant breathe through your nose. If you meet someone with CP who has speech problems, try hard to listen carefully when they are talking, and don’t be afraid to tell them when you cant understand something they’ve said. Most people would rather say it again or find a different way to communicate (maybe writing or pointing), than have you pretend you understood them when you did not.

Many of the same muscles involved in talking are also used when you eat. Some kids with CP might not be able to bite and chew foods like a hotdog or a peanut butter sandwich. They may also have trouble sucking through a straw or licking an ice cream cone.

Learning Problems

About one-fourth to one-half of children with Cerebral Palsy also have some type of learning problem. It may be a learning disability, so that they have trouble with one or two subjects in school but learn other things pretty well, or may be a more severe learning problem like mental retardation, in which they learn everything at a slower rate. There are many different levels of mental retardation, so that people with mild mental retardation may learn to read and write and do math, but people with more severe mental retardation probably will not. This does not mean that children with severe mental retardation cant learn. It means that they learn at a slower pace than most other kids, and that they will need some special learning help in school.

Seizures

About half of all children with Cerebral Palsy have seizures. This means that they have times when there is some abnormal activity in their brains that interrupts what they are doing. Often, the abnormal brain activity happens in the same place as the brain injury which caused the CP. Your brain is constantly sending messages out to your body to breathe, to move, to keep your heart pumping. A seizure is a series of abnormal messages being sent out very close together. These abnormal messages may cause someone to stare and stop moving during a seizure, or may cause them to loose control of their body and fall down. Some people show shaking movements all over when they are having a seizure. Seizures usually last a few seconds to a few minutes, and in most case are not dangerous. Many children take special medicine to help prevent seizures or reduce the number of seizures they have.

You may already know that seizures also occur in many people who do not have Cerebral Palsy.

Therapy for Cerebral Palsy

Children with Cerebral Palsy often go to different kinds of therapy to help them improve their motor skills for things like walking, talking and using their hands. Some kids get therapy at school and some kids go to a special clinic to see their therapists. Therapists are special teachers who are trained to work with people on learning better or easier ways to do things. Just like a coach who helps you learn and practice new skills to make you a better soccer or basketball player, therapists coach people to help them learn and practice new skills.

Physical Therapy

Physical therapists help children with CP learn better ways to move and balance. They may help children with Cerebral Palsy learn to walk, use their wheelchair, stand by themselves, or go up and down stairs safely. Kids may also work on fun skills in physical therapy like running, kicking and throwing a ball, or learning to ride a bike. Physical therapy is usually called PT for short.

Speech and Language Therapy

Speech therapists work with children on communication skills. Communication skills may mean talking, using sign language, or using a communication aid. Children with CP who are able to talk may work with a speech therapist on making their speech clearer, (easier to understand) or on building their language skills by learning new words, learning to speak in sentences, or improving their listening skills. Children who are not able to talk because of their difficulty controlling the muscles needed for speech may learn sign language or use some kind of communication aid. A communication aid might be a book or poster with pictures that show things the person might want, or an alphabet board that the person can use to spell out their message. There are also computers that are used as communication aids that actually talk for the person!

Occupational Therapy

Occupational therapists usually work with children on better ways to use their arms, hands, and upper body. They may teach children better or easier ways to write, draw, cut with scissors, brush their teeth, dress and feed themselves, or control their wheelchair. Occupational therapists also help children with CP find the right special equipment to make some everyday jobs a little easier.

Recreational Therapy

Recreational therapists help kids with Cerebral Palsy have fun! They work with children on sports skills or other leisure activities. In recreational therapy, kids may work on dance, swimming, or horseback riding. They may also work on art or horticulture (growing and taking care of plants), or almost any other hobby they are interested in.

Selective Dorsal Rhizotomy

Selective dorsal rhizotomy is a neurosurgical procedure which can permanently reduce spasticity and improve motor functions in children with cerebral palsy. If preformed at an early age it can reduce the number of orthopedic surgeries a child might need in the future. Learn more in our article on Selective Dorsal Rhizotomy.

Where Can I Get More Information?

United Cerebral Palsy (UCerebral Palsy)
1660 L Street, NW
Suite 700
Washington, DC 20036
Tel: 202-776-0406 800-USA-5UCerebral Palsy (872-5827)
Fax: 202-776-0414
E-mail [email protected] Palsy.org
Website: www.uCerebral Palsy.org

Pathways Awareness Foundation [For Children With Movement Difficulties]
150 N. Michigan Avenue
Suite 2100
Chicago, IL 60601
Tel: 312-893-6620 800-955-CHILD (2445)
Fax: 312-893-6621
E-mail [email protected]
Website: www.pathwaysawareness.org

March of Dimes Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
E-mail [email protected]
Website: www.marchofdimes.com

Easter Seals
230 West Monroe Street
Suite 1800
Chicago, IL 60606-4802
Tel: 312-726-6200 800-221-6827
Fax: 312-726-1494
E-mail [email protected]
Website: www.easterseals.com

Children’s Neurobiological Solutions (CNS) Foundation
1826 State Street
Santa Barbara, CA 93101
Tel: 866-CNS-5580 (267-5580) 805-898-4442
E-mail [email protected]
Website: www.cnsfoundation.org

Childrens Hemiplegia and Stroke Assoc. (CHASA)
4101 West Green Oaks Blvd., Ste. 305
PMB 149
Arlington, TX 76016
Tel: 817-492-4325
E-mail [email protected]
Website: www.hemi-kids.org

United Cerebral Palsy (UCerebral Palsy) Research & Educational Foundation
1025 Connecticut Avenue
Suite 701
Washington, DC 20036 Tel: 202-496-5060 800-USA-5UCerebral Palsy (872-5827)
Fax: 202-776-0414
E-mail [email protected] Palsy.org
Website: www.uCerebral Palsyresearch.org

Pedal with Pete [For Research on Cerebral Palsy]
P.O. Box 274
Kent, OH 44240
Tel: 800-304-PETE (7383)
Fax: 330-673-1240
E-mail [email protected]
Website: www.pedalwithpete.com

Day2DayParentingWhat is Cerebral Palsy?